It's been awhile since we posted how Jeb is doing and the reason for the long wait? Well, he's been busy being a little boy and I've been busy chasing him.
But, I'll back up and tell you that he just went to his second CF clinic check in October with normal everything. I honestly can't remember his weight and height, but do know that the weight was at 40ish percentile and his height at 25th. BMI is 50th, so everything is where it should be. Well, we're all a bit confused about the height considering his lofty Dutch parents, but we're guessing he'll follow in Tom's footsteps with a late increase in height. (Not to worry, it seems the older boys are following this same pattern too!) Dr. McColley talked to us again about the possibility of putting Jeb on a preventative nebulizer treatment, but I'm going with my gut and putting it off to see how the winter goes. So, we continue on until the next visit in January!
Anyway, we have been busy on Monday mornings seeing a physical therapist for Jeb's pectus. The best way to describe pectus in "a hallowed chest". Jeb's is not bad, in fact if you look at Tom and Jacob's chest, you'll see the same thing. BUT, pectus effects lung capacity and Jeb needs all he can get. So, we are seeing "Ms." Julie every Monday to try to correct this, as well as some rib issues that were created due to hospitalization. We'll see another specialist in December who is known world wide for correcting pectus. (It's good to be in Chicago!). In the meantime, Jeb thinks it's one on one gym time.
And to leave this post on an EXTREMELY good not, below is a video talking about a new drug that they have created at John Hopkins University. It's a pill (yeah! not a nebulizer!!) that can correct the saline problem in the lung, resulting in a NORMAL(!) lung. We are getting closer...keep praying.
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